Caregiver Burden
Caregiver burden
The term caregiver encompasses medical practitioners and family members that provide care to someone ill (Githuku et al., 2014)According to Mosby’s medical dictionary 2009, a caregiver is a person who contributes to the benefits of medical,social, economic or environmental resources to a dependent or anyone incapable of self-care. Caregiver burden is the “physical,emotional,psychological,social and financial problems that can be experienced by family members caring for the impaired persons,” (George et al., 1986) (Chappell and Reid., 2002). Most of the research on spina bifida has focused on the physical and neurocognitive aspects, with little focus being put to the psychological and social domains of functioning(Holmbeck and Devine., 2010). However, it is well known that the clinical symptoms of spina bifida place considerabledemands on the individuals and families involved,” (Kelly et al.,2008)(Holmbeck and Devine., 2010). Children with neural tube defects that survive are often at risk of psychosocial maladjustment and have life-long disabilities (Rofail et al., 2012). Activities of daily living, self-esteem, physical and sexual functioning and mental health are …show more content…
According to a survey that was done in the US from 2002-2010, the lifetime medical costs for a person with spina bifida range from $235 839 (20002 dollars) to $378 000(2010 dollars)with most parents earning a quarter of the money throughout their career span(Rofail et al., 2012). In terms of education , most children affected with spina bifida require special education and this is costly especially in developed countries, a 2002 survey that was done in USA reported it cost $43 371 (Rofail et al.,
The term caregiver encompasses medical practitioners and family members that provide care to someone ill (Githuku et al., 2014)According to Mosby’s medical dictionary 2009, a caregiver is a person who contributes to the benefits of medical,social, economic or environmental resources to a dependent or anyone incapable of self-care. Caregiver burden is the “physical,emotional,psychological,social and financial problems that can be experienced by family members caring for the impaired persons,” (George et al., 1986) (Chappell and Reid., 2002). Most of the research on spina bifida has focused on the physical and neurocognitive aspects, with little focus being put to the psychological and social domains of functioning(Holmbeck and Devine., 2010). However, it is well known that the clinical symptoms of spina bifida place considerabledemands on the individuals and families involved,” (Kelly et al.,2008)(Holmbeck and Devine., 2010). Children with neural tube defects that survive are often at risk of psychosocial maladjustment and have life-long disabilities (Rofail et al., 2012). Activities of daily living, self-esteem, physical and sexual functioning and mental health are …show more content…
According to a survey that was done in the US from 2002-2010, the lifetime medical costs for a person with spina bifida range from $235 839 (20002 dollars) to $378 000(2010 dollars)with most parents earning a quarter of the money throughout their career span(Rofail et al., 2012). In terms of education , most children affected with spina bifida require special education and this is costly especially in developed countries, a 2002 survey that was done in USA reported it cost $43 371 (Rofail et al.,