Expanding the role of the stroke nurse: a pragmatic clinical trial
Christopher Burton
DPhil PGCertHE BN RGN
Research Fellow, Department of Nursing, University of Central Lancashire, Preston, UK
Bernard Gibbon
PhD MSc DipN DipANS RMN RGN
Head of Department, Department of Nursing, University of Central Lancashire, Preston, UK
Accepted for publication 16 March 2005
Correspondence: Christopher Burton, Department of Nursing, University of Central Lancashire, Preston PR1 2HE, UK. E-mail: c.burton1@whsmithnet.co.uk
B U R T O N C . & G I B B O N B . ( 2 0 0 5 ) Journal of Advanced Nursing 52(6), 640–650 Expanding the role of the stroke nurse: a pragmatic clinical trial Aims. This paper reports a study evaluating whether expanding a specialist nursing role to provide outreach education and support to stroke patients and carers after discharge from hospital is effective in promoting recovery. Background. Building therapeutic relationships with patients and carers is a key component of the nursing role in stroke rehabilitation, although this is limited by the constraints of service organization. Methods. A pragmatic randomized controlled trial was undertaken. Patients with a diagnosis of stroke were randomized to receive continued support from a stroke nurse (n ¼ 87) or usual care and follow-up (n ¼ 89) after discharge from hospital. Patients were recruited from two hospitals in the north-west of England from November 1999 to April 2001. Patient dependence (Barthel Index), general health (Nottingham Health Profile), activities of living (Frenchay Activity of Living Index), depression (Beck Depression Inventory) and carer strain (Carer Strain Index) were assessed at 3 and 12 months after stroke. Results. The continued intervention of a stroke nurse after discharge was associated with improved patient perceptions of general health at 12 months (median difference 42Æ6, P ¼ 0Æ012),
References: Altman D.G. (1982) How large a sample? In Statistics in Practice (Gore S.M. & Altman D.G., eds), British Medical Association, London, pp. 6–8. Armitage P. (1998) Attitudes in clinical trials. Statistics in Medicine 17, 2675–2683. Beck A.T., Steer R.A. & Brown G.K. (1996) Beck Depression Inventory (2nd Edition) Manual. The Psychological Corporation, Harcourt Brace and Company, San Antonio, TX. Brereton L. & Nolan M. (2000) ‘You know he’s had a stroke, don’t you?’ Preparation for family care-giving – the neglected dimension. Journal of Clinical Nursing 9, 498–506. Burton C. (1999) An exploration of the stroke co-ordinator role. Journal of Clinical Nursing 8, 535–541. Burton C. (2000a) Rethinking stroke rehabilitation: the Corbin and Strauss chronic illness trajectory framework. Journal of Advanced Nursing 32, 595–602. Burton C. (2000b) A description of the nursing role in stroke rehabilitation. Journal of Advanced Nursing 32, 174–181. Burton C. (2003) Therapeutic nursing in stroke rehabilitation: a systematic review. Clinical Effectiveness in Nursing 7, 124–133. Dennis M., O’Rourke S., Slattery J., Staniforth T. & Warlow C. (1997) Evaluation of a stroke family care worker: results of a randomised trial. BMJ 314, 1071–1076. Doolittle N.D. (1991) Clinical ethnography of lacunar stroke: implications for acute care. Journal of Neuroscience Nursing 23, 235–240. Ó 2005 Blackwell Publishing Ltd, Journal of Advanced Nursing, 52(6), 640–650 649 C. Burton and B. Gibbon Pound P., Gompertz P. & Ebrahim S. (1998) A patient-centred study of the consequences of stroke. Clinical Rehabilitation 12, 338–347. Pound P., Gompertz P. & Ebrahim S. (1999) Social and practical strategies described by people living at home with stroke. Health and Social Care in the Community 7, 120–128. Robinson B.C. (1983) Validation of a Caregiver Strain Index. Journal of Gerontology 38, 344–348. Roland M. & Torgerson D.J. (1998) Understanding controlled trials: what are pragmatic trials? BMJ 316, 285–286. Russell I. & Henshaw R. (1996) The prevention of pelvic infection: the role of health technology assessment and transfer. In The Prevention of Pelvic Infection: Proceedings of the 31st Study Group of the Royal College of Obstetricians and Gynaecologists (Templeton A., ed.), Royal College of Gynaecologists, London, pp. 245–259. Schwartz D. & Lellouch J. (1967) Explanatory and pragmatic attitudes in clinical trials. Journal of Chronic Disability 20, 637–648. Sherwood G.D. (1997) Meta-synthesis of qualitative analyses of caring: defining a therapeutic model of nursing. Advanced Practice Nursing Quarterly 3, 32–42. Shih W.J. (2002) Problems in dealing with missing data and informative censoring in clinical trials. Current Controlled Trials in Cardiovascular Medicine. URL address http://cvm.controlledtrials.com/content/3/1/4. Speach D.P. & Dombovy M.L. (1995) Recovery from stroke: rehabilitation. Baillieres Clinical Neurology 4, 317–338. ` Stroke Association (1999) Stroke Care: a Matter of Chance. Stroke Association, London. Uys L.R. (1980) Towards the development of an operational definition of the concept ‘therapeutic use of self’. International Journal of Nursing Studies 17, 175–180. 650 Ó 2005 Blackwell Publishing Ltd, Journal of Advanced Nursing, 52(6), 640–650