Abstract
Mayer-Rokitansky-Kuster-Hauser syndrome (MRKH) is a rare syndrome that not only causes physical conditions but emotional. The psychological effects of woman diagnosed with MRKH have never been fully discovered. The hypothesis and or purpose of this study is to evaluate self-report measures of psychological distress in woman with MRKH syndrome compared to woman without MRKH syndrome. A group of woman with MRKH will be assessed through anxiety, depression, and self-esteem scales to determine any psychological distress MRKH had on them when they first received the diagnosis up until later on in life. Similar studies and theories believe that coping with infertility can be taxing and cause psychological issues throughout a woman’s life. I belief observing woman when diagnosed with MRKH as well as following up with woman after dealing with the initial shock of this syndrome will give insight to being able to give proper coping skills to not only woman with MRKH syndrome but woman with infertility issues.
Keywords: MRKH, anxiety, depression, infertility, menstrual disorders
Introduction
MRKH is a rare condition found in approximately 1 in 5000 female births, and it is typically diagnosed in mid-adolescence (Leidolf, 2006). The psychosexual development and the identity, femininity, body image and self-esteem of the patients can be significantly impaired by receiving this type of information about their bodies (Laggari, et al., 2009). Mayer-Rokitansky-Kuster-Hauser syndrome is a condition that involves congenital absence of the vagina, fallopian tubes, cervix and/ or uterus. Some women have uterine remnants, or horns. External genitalia are normal. Chromosome karyotype is 46XX(normal female). The incidence rate is approximately one in 5000. Other symptoms involved to varying degrees are kidney abnormalities, skeletal
References: Laggari, V., Diareme, S., Christogiorgos, S., Deligeorglou, E., Chrisopoulos, P., Tsiantis, J., & Creatsas, G. (2009). Anxiety and depression in adolescents with polycystic ovary syndrome and Mayer-Rokitansky-Kuster-Hauser syndrome. Journal of Psychosomatic Obstetrics and Gynecology, 30(22). 83-88. Laure Camborieux, Daniel Guerrier, Karine Morcel. (2007). Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome. Orphanet Journal of Rare Diseases. 13. Leidolf, E. (2006). The missing vagina monologue…and beyond. Journal of Gay Lesbian Psychotherapy. 10(2), 77-92. Heller-Boersma, J. G., Schmidt, U. H., & Edmons, D. (2009). Psychological distress in women with uterovaginal agenesis (Mayer-Rokitansky-Kuster-Hauser Syndrome. MRKH). Psychosomatics; Journal of Consultation Liason Psychiatry. 50(3). 277-281. Parker, L. (2012, November). Personal Interview Taylor, T. (2012, November). Personal Interview