When the doctors urged Lorenzo’s parent to have patience while research continues into the cure for their disease, what they were saying is, please be patient enough to wait until after your son’s death while we work on this. Lorenzo’s ALD was a chronic, debilitating and terminal illness that caused great degrees of anxiety to his family because it drained their resources while still leaving the family uncertain as to the potential outcome of the treatment that Lorenzo was receiving from the clinical trial he was enrolled in. The Odones found that prognosis unacceptable. Despite being enrolled in the clinical trial, Lorenzo’s blood levels of unbranched, saturated, very long chain fatty acids did not stop from rising. Reluctant to the idea of losing their only beloved child because of the ineffective treatment, the Odones decided to take matters into their own hands by spending the next years haunting research libraries, reading everything they could about ALD, talking to the parents of other sick children and using intuition to try to find some sort of cure on their …show more content…
Desperate for time, the Odones are eager to try experimental treatments for Lorenzo, but are told by other ALD parents that it is more proper to wait until such measures are approved by doctors. Since the Odones didn’t have formal training to be clinicians, the doctors were irritated by the Odones’ haste which showed the doctors’ maddeningly cautious view that no treatment can be tried until it has been discussed, financed and duly tested. Despite research dead-ends, the awfulness of watching their son's health decline, and being surrounded by skeptics (including the coordinators of the support group they attend), the Odones preserve which led them to organizing their own medical symposium and doing the outstanding work that leads to the title discovery, a miraculous substance that is mostly olive oil. "I am not a scientist," Augusto says angrily, when challenged about the oil by . "I am a father. And nobody can tell me what dressing I can put on my kid's salad, O.K.?" Augusto tries it on Lorenzo and which stops Lorenzo’s brain