Essay On Fragile X Syndrome

Fragile X syndrome is a genetic disorder that affects a person from birth. Fragile X syndrome can differ from case to case in the severity of the disorder. Many people that suffer from Fragile X have long, narrow faces, large ears, and tend to be double jointed. Fragile X, whether you have the syndrome or not, affects the everyday lives of many. There are many things that people can do to support people with Fragile X and make it easier for individuals that suffer from this disorder to cope with it. In many cases people with the Fragile X syndrome grow into their social anxiety. At young ages it is not very apparent that a child who suffers from the Fragile X syndrome has social anxiety unless they are around people that they are not familiar with. As a person with the syndrome grows older the social anxiety becomes very noticeable even around people that they know. They seem to be uncomfortable with familiar people and it is obvious that they do not want to associate with you. This discourages many people from conversing with not only victims of Fragile X, but other disorders as well. However for anyone who has been around a person with fragile x would tell you they are some of the nicest and most enjoyable people to be around.
People that suffer from the Fragile X syndrome sometimes do not feel adequate when going out in public.
This causes great stress for the victims of this disorder. In many cases parents do not feel obligated to have their disabled child participate in many things that a normal child the same age would enjoy, for example T-Ball, going to birthday parties, or have friends stay the night at their home. If children with Fragile X syndrome are included in events and activities that children with no disabilities are apart of it will help them feel more involved in the community and will help them later on in life. When parents are actively involved in the child's social life from a young age it positively affects the child as they grow
older. For people that suffer from Fragile X syndrome it would mean alot to be included in events that they usually would not be able to participate in. Things like being on the baseball team, going to prom, or being apart of the high school student section. To make the next step in developing students that suffer from Fragile X socially it would take a lot of time and effort. However, it is very achievable if you have the right structures set around them. One tendency that I have found in my own brother is that victims of the disorder will become very comfortable with peers if they communicate on a daily basis. For example my friends in highschool were always around my house and communicating with my brother. This made him much more comfortable in the school because he knew many people there. I think it is very essential for people that suffer from fragile x syndrome to be social from a young age in order to help them later on in life in coping with their social anxiety. In a world that looks down upon disabilities it is very hard for some individuals with Fragile X to be accepted socially into everyday life. If parents encourage social behavior from the start of a child's life it will help them develop and it is going to help them build long term relationships with the people around them. Being included from a young age will positively affect a child for the rest of their lives in coping with this birth disorder.