Because of genetic testing, and technologies such as echocardiograms, parents are able to be informed in advance, of their child’s diagnosis and future. Ethical considerations include an informed consent process, which ideally respects the “autonomy, whishes, values, and beliefs” of the pregnant mother with sensitivity and empathy (Mavroudis et. …show more content…
This was a very happy baby, and I was honored to watch this child thrive, with a few minor setbacks. Today at almost 5 years of age, the child will be undergoing the final heart repair surgery (usually done at age 5) and no longer has a tracheostomy, or feeding tube. The child goes to school now and plays with siblings and neighborhood pals. Taking care of the child in the home helped cut hospitalizations costs tremendously, and limits these children’s exposure to nosocomial infections (hospital