Hemophilia is a bleeding disorder that prevents a person's blood from clotting properly. This means that it is harder for the person's body to stop bleeding. Hemophilia is a lifelong condition that usually starts in childhood. A child with hemophilia may have prolonged bleeding after an injury or even without an injury. This occurs because the child has low levels of a type of protein that helps the blood to form clots. These proteins are called clotting factors.
There are two main types of hemophilia:
• Hemophilia A is the most common type. It is caused by low levels of clotting factor VIII.
• Hemophilia B is less common. It is caused by low levels of clotting factor IX.
With hemophilia, bleeding can range from …show more content…
A health care provider may suspect hemophilia in a child who bruises and bleeds easily. Blood tests will be done to:
• Measure bleeding time.
• Measure clotting factors. This test will identify the type of hemophilia.
If there is a family history of hemophilia, diagnosis can be made before birth. After 12 weeks of pregnancy, a health care provider can test a sample of fluid from inside the womb to make a diagnosis.
TREATMENT
The main treatment for this condition is replacement of the clotting factor that is missing. Your child will be given the clotting factor through an IV tube. How often this is done depends on how severe the hemophilia is. Your child may be given clotting factor regularly to prevent bleeding or may be given it only when bleeding occurs. You may also be taught to administer the clotting factor to your child at home. Other treatments may include:
• A hormone (desmopressin) that may help keep blood clots from breaking down. This is only used for mild types of hemophilia A. It stimulates the release of clotting factor …show more content…
This medicine is taken by mouth. It may be given to people with frequent nose or mouth bleeding. It may also be given before dental procedures.
HOME CARE INSTRUCTIONS
Be sure to work with a team of health care providers who specialize in hemophilia. In the U.S., these teams are located at hemophilia treatment centers (HTCs). At an HTC, you can get help with home care, education about hemophilia, and support. To find an HTC near you, go to the Centers for Disease Control and Prevention website at www.cdc.gov/ncbddd/hemophilia/HTC.html.
Activity
• Make sure your child avoids any activities that his or her health care provider says are not safe. Your child may need to avoid or limit activities or contact sports that could result in a fall or injury.
• Have your child use elbow and knee padding and wear a helmet during athletic or recreational activities as told by the child's health care provider.
• Have your child get regular exercise through activities recommended by the child's health care provider.
Safety
• Use seat belts and safety belts to protect your child from injuries.
• Avoid having furniture with sharp corners in the house.
• Keep any sharp objects stored where children cannot get