Personal Narrative: My Mother's Epilepsy
Epilepsy was something my Aunt Claire had. “Claire’s in a seizure!” was something I heard on a daily basis. So much so that I had lost the fear of seeing her writhing around the floor. It was commonplace, a part of our lives.
However, that Wednesday morning, I didn’t realise that at four o’clock that day , I would be the person with… that.
Initially I had felt I had been robbed of my independence. Gone were the days where I could run out the door saying “I’m off out”.
I remember getting ready for the gym… then what felt like seconds later lying in an ambulance, with the pressure of the oxygen mask against my face and the sirens blaring. Recalling the turning of peoples heads, as I was wheeled through the centre of A&E. I’d never been so mortified, …show more content…
Since Claires had her epilepsy for 40 years in contrast to my 2 years, her appointment took longer. Claire’s always been known as mentally and physically handicapped with no specific name to her condition. After many weeks of anticipation, there was zero link between mine and my Aunt’s epilepsy. She was actually diagnosed with Dravet Syndrome, a rare form of epilepsy. For many years I’d help with the feeds and medications, I’d often wonder what she was thinking but she’d give the occasional smile, even though Claire’s condition is a lot worse than mine and can’t be controlled, I hope one day mine will. So I can have a positive outlook on life and achieve all my life ambitions.
I often questioned myself about that bump in the head I had got playing outside many years before. I knew , you can’t help but wonder. I had initially thought my epilepsy was somthing genetic, my aunt had it, and so did a few other family memebers, so it was the only foreseeable answer. However, that thought was quickly erased from my mind with the genetics test proving there was no link at all, leaving me questioning that bump in my head, even to this day. But all the questioning would be left forever with no answer, so we’ll never know how it
However, that Wednesday morning, I didn’t realise that at four o’clock that day , I would be the person with… that.
Initially I had felt I had been robbed of my independence. Gone were the days where I could run out the door saying “I’m off out”.
I remember getting ready for the gym… then what felt like seconds later lying in an ambulance, with the pressure of the oxygen mask against my face and the sirens blaring. Recalling the turning of peoples heads, as I was wheeled through the centre of A&E. I’d never been so mortified, …show more content…
Since Claires had her epilepsy for 40 years in contrast to my 2 years, her appointment took longer. Claire’s always been known as mentally and physically handicapped with no specific name to her condition. After many weeks of anticipation, there was zero link between mine and my Aunt’s epilepsy. She was actually diagnosed with Dravet Syndrome, a rare form of epilepsy. For many years I’d help with the feeds and medications, I’d often wonder what she was thinking but she’d give the occasional smile, even though Claire’s condition is a lot worse than mine and can’t be controlled, I hope one day mine will. So I can have a positive outlook on life and achieve all my life ambitions.
I often questioned myself about that bump in the head I had got playing outside many years before. I knew , you can’t help but wonder. I had initially thought my epilepsy was somthing genetic, my aunt had it, and so did a few other family memebers, so it was the only foreseeable answer. However, that thought was quickly erased from my mind with the genetics test proving there was no link at all, leaving me questioning that bump in my head, even to this day. But all the questioning would be left forever with no answer, so we’ll never know how it