Treatment Ambiguity: A Case Study
Financial burden
Even families with comprehensive resources find that their resources rarely cover all medical expenses. One parent said, ‘I have no savings at all, we are eating hand to mouth, the therapies and everything are very expensive. “Beyond direct medical costs, the parents said there were numerous unpredictable out-of-pocket expenses for caring for a child with autism. For instance costs of transportation to repeated clinic, therapy visits, baby sitting for well-children. Ironically the other parent found himself ‘Chained’ to a particular job, owing to the realization that probably other organizations would not understand their needs at all (Heiman 2002).
Treatment Ambiguity
It refers to the degree of parental judgment or discretion …show more content…
Our involvement is primarily in informing, educating parents about the child’s diagnosis, their care service delivery, constructing system about their competence and mastery. We can help them to define clearly the kinds of help they need in order to function effectively. We can help them transcend their discomfort of their avoidance of friends and family to make their needs known. Lot of work needs to be done to empower these families and enhance resistance. Peterson (1991) observed that families that maintain some normalcy in family routine and identify, maintain clear generational boundaries, have open communication and develop collaborative relationships with the helping professionals available to them are able to deal with the stresses …show more content…
To assess and study the coping strategies adopted by the parents as primary caregivers of the child with autism.
The sample consisted of 20 parents of children with autism. The participants were selected form UDAAN which is a centre for the differently abled. The tools used in the study was a semi-structured interview, parent stress index, adjustment interview schedule and coping checklist.
The data was collected, analyzed and interpreted by calculating the percentages, intercorrelation, regression analysis and thematic analysis.
The results revealed the following trends:
1) Significant stress was found in the parents of children with autism. The stress could be attributed to certain behaviours of the child such as demandingness and moody behaviour. Stress could also be due to the parents own functioning such as feelings of incompetence, isolation and role-restriction. Parents also felt that situational factors further aggravated the total stress experienced.
2) The coping style of the parents revealed the use of problem solving often. Occasionally to cope with the stress of the situation, they would also rely on distraction positive, social support for help.
3) A significant number of parents were found to be maladjusted requiring professional help.
Even families with comprehensive resources find that their resources rarely cover all medical expenses. One parent said, ‘I have no savings at all, we are eating hand to mouth, the therapies and everything are very expensive. “Beyond direct medical costs, the parents said there were numerous unpredictable out-of-pocket expenses for caring for a child with autism. For instance costs of transportation to repeated clinic, therapy visits, baby sitting for well-children. Ironically the other parent found himself ‘Chained’ to a particular job, owing to the realization that probably other organizations would not understand their needs at all (Heiman 2002).
Treatment Ambiguity
It refers to the degree of parental judgment or discretion …show more content…
Our involvement is primarily in informing, educating parents about the child’s diagnosis, their care service delivery, constructing system about their competence and mastery. We can help them to define clearly the kinds of help they need in order to function effectively. We can help them transcend their discomfort of their avoidance of friends and family to make their needs known. Lot of work needs to be done to empower these families and enhance resistance. Peterson (1991) observed that families that maintain some normalcy in family routine and identify, maintain clear generational boundaries, have open communication and develop collaborative relationships with the helping professionals available to them are able to deal with the stresses …show more content…
To assess and study the coping strategies adopted by the parents as primary caregivers of the child with autism.
The sample consisted of 20 parents of children with autism. The participants were selected form UDAAN which is a centre for the differently abled. The tools used in the study was a semi-structured interview, parent stress index, adjustment interview schedule and coping checklist.
The data was collected, analyzed and interpreted by calculating the percentages, intercorrelation, regression analysis and thematic analysis.
The results revealed the following trends:
1) Significant stress was found in the parents of children with autism. The stress could be attributed to certain behaviours of the child such as demandingness and moody behaviour. Stress could also be due to the parents own functioning such as feelings of incompetence, isolation and role-restriction. Parents also felt that situational factors further aggravated the total stress experienced.
2) The coping style of the parents revealed the use of problem solving often. Occasionally to cope with the stress of the situation, they would also rely on distraction positive, social support for help.
3) A significant number of parents were found to be maladjusted requiring professional help.